Mapping Self-Care Behaviours Adopted by Family Caregivers During the COVID-19 Pandemic: A Scoping Review
DOI:
https://doi.org/10.25159/2520-5293/18673Keywords:
self-care activities, activities of daily living, family caregivers, older persons, COVID-19 pandemic, caregiver stressAbstract
Self-care behaviours are health-promoting activities adopted by family caregivers to maintain and sustain their well-being. Given the impact of COVID-19 on family caregiving, this article presents findings from a scoping review (2020–2023) examining the self-care behaviours adopted by family caregivers (FCGs) to cope with caregiver stress during the pandemic. The review was guided by the Arksey and O’Malley framework. It adopts the two-stage screening process to determine the eligibility of articles. From 4 679 articles initially screened, 10 were included in the review. From these, content related to self-care behaviours, activities, methods, interventions, models and strategies adopted by family caregivers during the COVID-19 pandemic was extracted and analysed. The findings revealed that family caregivers participated in health promotion activities and disease prevention training sessions during the pandemic. These measures offered caregivers COVID-19-related guidance on supporting their sick or elderly relatives as well as strategies for managing their own stress, anxiety and depression. They also adopted psychological and mental health behaviours and activities, including physical exercise, healthy eating and other lifestyle changes. This study highlights the need for policymakers in family nursing and elderly care to develop policies that promote the use of technology-driven self-care activities, recognising that the health and well-being of family caregivers is essential for providing effective care to elderly and sick relatives. The review found a lack of studies conducted in resource-limited settings, such as in Africa, suggesting that future research should focus on including populations from these regions.
References
Amin, F., H. Ostadebrahimi, Z. Kamiab, G. Bazmandegan, S. Saadat, and E. Shakiba. 2022. “Correlation Between Health Literacy and Self-care Behaviours in Patients with COVID-19.” Journal of Health Literacy 7 (3): 82–90. https://doi.org/10.22038/jhl.2022.64166.1276
Antonio, E., M. Alobo, M. T. Bayona, K. Marsh, and A. Norton. 2020. “Funding and COVID-19 Research Priorities – Are the Research Needs for Africa Being Met?” AAS Open Research 3. https://doi.org/10.12688/aasopenres.13162.1
Archer, J., W. Reiboldt, M. Claver, and J. Fay. 2021. “Caregiving in Quarantine: Evaluating the Impact of the Covid-19 Pandemic on Adult Child Informal Caregivers of a Parent.” Gerontology and Geriatric Medicine 7: 2333721421990150. https://doi.org/10.1177/2333721421990150
Arksey, H., and L. O’Malley. 2007. “Scoping Studies: Towards a Methodological Framework.” International Journal of Social Research Methodology 8 (1): 19–32. https://doi.org/10.1080/1364557032000119616
Budnick, A., C. Hering, S. Eggert, C. Teubner, R. Suhr, A. Kuhlmey, and P. Gellert. 2021. “Informal Caregivers During the COVID-19 Pandemic Perceive Additional Burden: Findings from an Ad-hoc Survey in Germany.” BMC Health Services Research 21 (1): 1–11. https://doi.org/10.1186/s12913-021-06359-7
Centre for Disease Control and Prevention. 2020. “Care for Yourself One Small Way Each Day.” CDC. https://www.cdc.gov/mentalhealth/stress-coping/care-for-yourself/pdfs/General-Public-Care-for-Yourself.pdf
Chan, E., L. T. Wu, E. Ng, G. Glass Jr. and R. Tan. 2022. “Applying the RE‑AIM Framework to Evaluate a Holistic Caregiver‑Centric Hospital‑to‑Home Programme: A Feasibility Study on Carer Matters.” Health Services Research 22, 1 of 17. https://doi.org/10.1186/s12913-022-08317-3
Chiesa, V., G. Antony, M. Wismar, and B. Rechel. 2021. “COVID-19 Pandemic: Health Impact of Staying at Home, Social Distancing and ‘Lockdown’ Measures – A Systematic Review of Systematic Reviews.” Journal of Public Health, 43 (3): e462-e481. https://doi.org/10.1093/pubmed/fdab102
Czeisler, M. É., R. I. Lane, E. Petrosky, J. F. Wiley, A. J. Christensen, R. Njai, M. D. Weaver, R. Robbins, E. R. Facer-Childs, L. K. Barger, C. A. Czeisler, M. E. Howard, and S. M. W. Rajaratnam. 2020. “Mental Health, Substance Use, and Suicidal Ideation During the COVID-19 Pandemic – United States.” Morbidity and Mortality Weekly Report 32. https://doi.org/10.15585/mmwr.mm6932a1
Daley, S., N. Farina, L. Hughes, E. Armsby, N. Akarsu, J. Pooley, G. Towson, Y. Feeney, N. Tabet, B. Fine, and S. Banerjee. 2022. “Covid-19 and the Quality of Life of People With Dementia and Their Carers – The TFD-C19 Study.” PloS one 17 (1): 1–13. https://doi.org/10.1371/journal.pone.0262475
Danby, A., T. Benson, and G. Garip. 2023. “‘Turbulence Even in a Bubble’: A Reflexive Thematic Analysis With Family Caregivers of People With Dementia in the United Kingdom During and Beyond the COVID-19 Pandemic.” Psychology & Health: 1–26. https://doi.org/10.1080/08870446.2023.2289460
Dellafiore, F., C. Arrigoni, T. Nania, R. Caruso, I. Baroni, I. Vangone, S. Russo, and S. Barello. 2022. “The Impact of COVID-19 Pandemic on Family Caregivers’ Mental Health: A Rapid Systematic Review of the Current Evidence.” Acta Bio Medica: Atenei Parmensis 93 (Suppl 2). https://doi.org/10.3390/ijerph19074382
Disabato, D. J., P. Aurora, P. G. Sidney, J. M. Taber, C. A. Thompson, and K. G. Coifman. 2022. “Self-Care Behaviors and Affect During the Early Stages of the COVID-19 Pandemic.” https://search.ebscohost.com/login.aspx?direct=true&AuthType=shib&db=eric&AN=ED623073&site=eds-live&scope=site&custid=s5210036
Erlingsson, C., and P. Brysiewicz. 2013. “Orientation Among Multiple Truths: An Introduction to Qualitative Research.” African Journal of Emergency Medicine 3 (2): 92–99. https://doi.org/10.1016/j.afjem.2012.04.005
Fieselmann, J., D. Wahidie, Y. Yilmaz-Aslan, and P. Brzoska. 2022. “Additional Burdens of Family Caregivers During the COVID‐19 Pandemic: A Qualitative Analysis of Social Media in Germany.” Nursing & Health Sciences 24: 414–422. https://doi.org/10.1111/nhs.12937
González-Fraile, E., J. Ballesteros, J. R. Rueda, B. Santos-Zorrozúa, I. Solà, and J. McCleery. 2021. “Remotely Delivered Information, Training and Support for Informal Caregivers of People with Dementia.” Cochrane Database of Systematic Reviews 1. https://doi.org/10.1002/14651858.CD006440.pub3
Gräler, L., L. Bremmers, P. Bakx, J. van Exel, and M. van Bochove. 2022. “Informal Care in Times of a Public Health Crisis: Objective Burden, Subjective Burden and Quality of Life of Caregivers in The Netherlands During the COVID‐19 Pandemic.” Health & Social Care in the Community 30 (6): e5515-e5526. https://doi.org/10.1111/hsc.13975
Harper, L., N. Kalfa, G. M. A. Beckers, M. Kaefer, A. J. Nieuwhof-Leppink, M. Fossum, K. W. Herbst, and D. Bagli. (2020). “The Impact of COVID-19 on Research.” Journal of Pediatric Urology 16 (5): 715–716. https://doi.org/10.1016/j.jpurol.2020.07.002
Lake, J., T. Volpe, L. St. John, A. Thakur, L. Steel, A. Baskin, A. Durbin, M. Chacra, and Y. Lunsky. 2022. “Mental Health and COVID-19: The Impact of a Virtual Course for Family Caregivers of Adults with Intellectual and Developmental Disabilities.” Journal of Intellectual Disability Research 66: 677–689. https://doi.org/10.1111/jir.12965
Lee, S., D. O’Neill, and H. Moss. 2022. “Dementia-inclusive Group-singing online During COVID-19: A Qualitative Exploration.” Nordic Journal of Music Therapy 31 (4): 308–326. https://doi.org/10.1080/08098131.2021.1963315
Levac, D., H. L. Colquhoun, and K. K. O’Brien. 2010. “Scoping Studies: Advancing the Methodology.” Implementation Science 5 (69): 1–9. https://doi.org/10.1186/1748-5908-5-69
Lightfoot, E., H. Yun, R. Moone, J. Otis, K. Suleiman, K. Turck, and C. Kutzler. 2021. “Changes to Family Caregiving of Older Adults and Adults with Disabilities During COVID-19.” Gerontology and Geriatric Medicine 7: 1–7. https://doi.org/10.1177/23337214211002404
Masoud, S., A. A. Glassner, M. Mendoza, S. Rhodes, and C. L. White. 2022. “‘A Different Way to Survive’: The Experiences of Family Caregivers of Persons Living With Dementia During the COVID-19 Pandemic.” Journal of Family Nursing 28 (3): 243–257. https://doi.org/10.1177/10748407221111079
Mattos, E. B. T., I d. C. Francisco, G. C. Pereira, and M. M. P. C. Novelli. (2021). “Virtual Support Group for Family Caregivers of Elderly People with Dementia in the COVID-19 Scenery.” Cadernos Brasileiros de Terapia Ocupacional 29. https://doi.org/10.1590/2526-8910.ctore2201
Moher, D., A. Liberati, J. Tetzlaff, D. G. Altman, and The PRISMA Group. 2009. “Preferred Reporting Items for Systematic Reviews and Meta-Analyses: The PRISMA Statement.” PLoS Medicine 9 (7). https://doi.org/10.1371/journal.pmed.1000097
Morelen, D., J. Najm, M. Wolff, and K. Daniel. 2022. “Taking Care of the Caregivers: The Moderating Role of Reflective Supervision in the Relationship Between COVID‐19 Stress and the Mental and Professional Well‐being of the IECMH Workforce.” Infant Mental Health Journal 43 (1): 55–68. https://doi.org/10.1002/imhj.21956
Nia, M., S. Mohajer, N. Bagheri, and T. Sarboozi‑hoseinabadi. 2022. “The Effects of Family‑centered Empowerment Model on Depression, Anxiety, and Stress of the Family Caregivers of Patients with COVID‑19: A Randomized Clinical Trial.” BMC Primary Care 23, 1 of 10. https://doi.org/10.1186/s12875-022-01795-8
Nugroho, D. C. A., D. Sulistiawan, R. F. Arifa, M. Gayatri, M. D. Puspitasari, and F. W. Prabowo. 2021. “Ehealth Literacy and Self-Care Behavior During the Coronavirus Disease-19 Pandemic Among Youths: A Path Analysis.” Open Access Macedonian Journal of Medical Sciences 9: 722–728. https://doi.org/10.3889/oamjms.2021.6664
Oliveira, D., S. H. Zarit, and M. Orrell. 2019. “Health-promoting Self-Care in Family Caregivers of People with Dementia: The Views Of Multiple Stakeholders.” The Gerontologist 59 (5): e501–e511. https://doi.org/10.1093/geront/gnz029
Ong-Artborirak, P., K. Seangpraw, S. Boonyathee, N. Auttama, and P. Winaiprasert. 2023. “Health Literacy, Self-Efficacy, Self-Care Behaviors, and Glycemic Control Among Older Adults with Type 2 Diabetes Mellitus: A Cross-Sectional Study in Thai Communities.” BMC Geriatrics 23 (1): 297. https://doi.org/10.1186/s12877-023-04010-0
Hartweg, D. 1991. Dorothea Orem: Self-Care Deficit Theory. Sage Publications. https://doi.org/10.4135/9781483325842
Ouzzani, M., H. Hammady, Z. Fedorowitz, and A. Elmagarmid. 2016. “Rayyan – A Web and Mobile App for Systematic Reviews.” Systematic Reviews 5: 210. https://doi.org/10.1186/s13643-016-0384-4
Phillips, D., G. Paul, M. Fahy, L. Dowling-Hetherington, T. Kroll, B. Moloney, C. Duffy, G. Fealy, and A. Lafferty. 2020. “The Invisible Workforce During The COVID-19 Pandemic: Family Carers At The Frontline.” HRB Open Research 3. https://doi.org/10.12688/hrbopenres.13059.1
Pouresmali, A., B. Molaei, S. Dargahi, D. Fathi, J. Alizadehgoradel, and A. Kamran. 2022. “Self-care Behavior Prevention of COVID-19 in the General Population Based on Pender Health Promotion Model: A Cross-Sectional Study.” Health Science Reports 5 (6). https://doi.org/10.1002/hsr2.894
Qian, Y., S. Asad, E. Park, J. Mills, and E. Kent. 2023. “Rural Resilience During COVID-19: The Lived Experience of North Carolinian Rural-Dwelling Cancer Caregivers.” Support Care Cancer 31 (7), 1–16. https://doi.org/10.1007/s00520-023-07840-1
Rad, M., F. Dizavandi, and A. Dizavandi. 2023. “The Effect of Education through Telenursing on the Caregiver Burden Among Family Caregivers of COVID-19 Patients: A Randomized Clinical Trial.” Perspectives in Psychiatric Care 2023: 1–10. https://doi.org/10.1155/2023/2545639
Raemdonck, E., D. Lambotte, N. De Witte and E. Gorus. 2022. “Giving Voice to Informal Caregivers of Community-Dwelling Older Adults: A Systematic Review of Empowerment Interventions.” Health & Social Care in the Community, 30 (6), e3354–e3368. https://doi.org/10.1111/hsc.13928
Rahimi, T., N. Dastyar, and F. Rafati. 2021. “Experiences of Family Caregivers of Patients with COVID-19.” BMC Family Practice 22: 1–10. https://doi.org/10.1186/s12875-021-01489-7
Rezaalizadeh, N., A. Sheykhalishahi, and F. Nikraftar. 2023. “The Effect of Post-discharge Education Program on Self-Efficacy and Satisfaction of Family Caregivers of Patients with COVID-19.” Evidence-based Care Journal 13 (4): 64–73. https://doi.org/10.22038/EBCJ.2023.69473.2753
Robinson‐Lane, S. G., A. N. Leggett, F. U. Johnson, N. Leonard, A. G. Carmichael, G. Oxford, T. Miah, J. J. Wright, A. C. Blok, and T. J. Iwashyna. 2022. “Caregiving in the COVID‐19 Pandemic: Family Adaptations Following an Intensive Care Unit Hospitalisation.” Journal of Clinical Nursing. https://doi.org/10.1111/jocn.16560
Rose, L., F. Muttalib, and N. K. J. Adhikari. 2019. “Psychological Consequences of Admission to the ICU: Helping Patients and Families.” J of Ame Med Asso 322 (3), 213–215. https://doi.org/10.1001/jama.2019.9059
Russell, D., J. G. Burgdorf, K. T. Washington, J. Schmitz, and K. H. Bowles. 2023. “‘Second Set Of Eyes’: Family Caregivers and Post-Acute Home Health Care During the COVID-19 Pandemic.” Patient Education and Counseling 109: 107627. https://doi.org/10.1016/j.pec.2023.107627
Sakur, F., K. Ward, N. N. Khatri, and A. Y. S. Lau. 2022. “Self-care Behaviors and Technology Used During COVID-19: Systematic Review.” JMIR Human Factors 9 (2): e35173. https://doi.org/10.2196/35173
Todorovic, N., M. Vracevic, N. Rajovic, V. Pavlovic, P. Madzarevic, J. Cumic, T. Mostic, N. Milic, T. Rajovic, R. Sapic, P. Milcanovic, I. Velickovic, S. Culafic, and D. Stanisavljevic. 2020. “Quality of Life of Informal Caregivers Behind the Scene of the COVID-19 Epidemic in Serbia.” Medicina (Kaunas) 56 (12). https://doi.org/10.3390/medicina56120647
Tulloch, K., T. McCaul, and T. Scott. 2021. “Positive Aspects of Dementia Caregiving During the COVID-19 Pandemic.” Clinical Gerontologist 45 (1): 86–96. https://doi.org/10.1080/07317115.2021.1929630
World Health Organization. 2022. “WHO Guideline on Self-Care Interventions for Health and Well-Being.” World Health Organization.
Zabor, E. C., A. M. Kaizer, and B. P. Hobbs. 2020. “Randomized Controlled Trials.” Chest, 158 (1s), S79–S87. https://doi.org/10.1016/j.chest.2020.03.013
Zhang, Q., B. Li, J. Han, S. Chen, Y. Lu, S. Tang and Q. Wang. 2024. “‘There is Always Good Fortune in Misfortune to Encourage Us in Coping with Difficulties’ —The Lived Experiences of Family Caregivers of People with Dementia During The COVID‐19 Outbreak in China: A Phenomenological Study.” Journal of Clinical Nursing (John Wiley & Sons, Inc.), 33 (2), 678–690. https://doi.org/10.1111/jocn.16897
Zhao, N., G. Zhou. 2020. “Social Media Use and Mental Health During the COVID‐19 Pandemic: Moderator Role of Disaster Stressor and Mediator Role of Negative Affect.” Applied Psychology: Health and Well‐Being, 12 (4): 1019–1038. https://doi.org/10.1111/aphw.12226
 
			
		 
			 
			 
				